Mother reveals in excruciating detail her final heartbreaking conversation with her dying four-year-old son who tells her ‘I’ll go to Heaven and play until you get there’

A mother has revealed the heartbreaking last conversation she had with her dying four old son.

Ruth Scully, from Leonardtown, Maryland, lost her four-year-old son, Nolan, in February of 2017 to Rhabdomyosarcoma. 

The cancer, which affects the soft skeletal tissue, is highly aggressive and can spread quickly – becoming resistant to all forms of treatment. 

Nolan had just 15 months to fight the disease, from November 2015 to February 2017, before it took his life. 

In one of their last conversations together, she told her son that he ‘didn’t have to fight anymore’ who said he would go to Heaven and ‘play until you get there’. 

Ruth Scully lost her son Nolan, both seen here, in February of 2017 to a rare form of cancer

The cancer , which affects the soft skeletal tissue, is highly aggressive and can spread quickly - becoming resistant to all forms of treatment

The cancer , which affects the soft skeletal tissue, is highly aggressive and can spread quickly – becoming resistant to all forms of treatment

In November of 2015, doctors diagnosed Nolan with Alveolar Rhabdomyosarcoma, a rare soft tissue cancer

In November of 2015, doctors diagnosed Nolan with Alveolar Rhabdomyosarcoma, a rare soft tissue cancer 

Scully recalls telling her son ‘it hurts to breathe doesn’t it?’, who responded ‘weeeelll…yeah.’

‘You’re in a lot of pain aren’t you baby?’, she said, before adding ‘poot, this cancer stuff sucks. You don’t have to fight anymore.’

Her son responded: ‘I don’t. But I will for you Mommy’, which caused Scully to question, ‘is that what you have been doing?? Fighting for Mommy??’

Despite the circumstances, Nolan bravely told his mom: ‘well DUH!’ before Ruth asks him: ‘What is Mommy’s job?’, to which he replied with a big grin, ‘to keep me safe’. 

Ruth said her heart was shattering as she told him: ‘Honey. I can’t do that anymore here. The only way I can keep you safe is in Heaven.’

Heartbreakingly, Nolan told her: ‘I’ll just go to Heaven and play until you get there! You’ll come right?’, to which she responded: ‘Absolutely.’

In September 2015, Nolan came down with a stuffy nose, which his parents just assumed was a common cold.

But soon, his breathing became difficult. Doctors tried antibiotics, a humidifier, steam and saline spray – but nothing worked. They decided to take biopsies of his adenoid tissue, which sits behind the nasal cavity.

Finally, in November of 2015, doctors diagnosed Nolan with Alveolar Rhabdomyosarcoma, a rare soft tissue cancer – a tumor had been compressing his airway causing his ‘stuffy nose’.

Pictures shared on social media show a bright and happy young boy, posing for pictures with hospital staff and family with a beaming smile. 

In September 2015, Nolan came down with a stuffy nose, which his parents just assumed was a common cold

In September 2015, Nolan came down with a stuffy nose, which his parents just assumed was a common cold

In one of their last conversations together, she told her son that he 'didn't have to fight anymore' who said he would go to Heaven and 'play until you get there'

In one of their last conversations together, she told her son that he ‘didn’t have to fight anymore’ who said he would go to Heaven and ‘play until you get there’

An oncologist told the family that the four-year-old's cancer had spread and large tumors were compressing his bronchial tubes and heart just four weeks after open chest surgery

An oncologist told the family that the four-year-old’s cancer had spread and large tumors were compressing his bronchial tubes and heart just four weeks after open chest surgery 

The cancer grows in muscles, fat, bones or the linings of joints. Patients often experience drooping eyelids, headaches and nausea, trouble urinating and having bowels movements.

Rounds of chemotherapy and radiation soon followed. Nolan lost his hair and gradually grew weaker.

The disease is an aggressive and highly malignant form of cancer and, in Nolan, it started spreading throughout his body.

Once it spreads, the survival rate falls between 20 percent and 40 percent.

Ruth wrote about how she had wanted to describe Nolan’s last days for a while and how her son ‘was made of nothing but pure love.’

On a Facebook page she and husband Jonathan created called Nolan Strong, Ruth describes her feelings as ‘agony unlike any other’, in a touching tribute.

When Ruth took Nolan to the hospital for the last time, he had been battling cancer for more than a year, had not eaten or drank anything in days and was continuously vomiting.

On February 1, the oncologist told the family that the four-year-old’s cancer had spread and large tumors were compressing his bronchial tubes and heart just four weeks after open chest surgery.

The cancer had become resistant to all treatment options and all doctors could do now was keep Nolan comfortable as he was deteriorating rapidly.

‘When I brought Nolan to the hospital for the last time, I knew there was something else wrong other than just a lingering case of C-DIFF. I just knew, and strange enough, I think he did too. He hadn’t eaten or drank anything in days and was continually vomiting,’ she wrote.

‘On February 1st we were sat down with his ENTIRE team. When his Oncologist spoke, I saw the pure pain in her eyes.

Pictures shared on social media show a bright and happy young boy, posing for pictures with hospital staff, seen here with Doctor Kate, and family with a beaming smile

Pictures shared on social media show a bright and happy young boy, posing for pictures with hospital staff, seen here with Doctor Kate, and family with a beaming smile

Ruth shared a photo of Nolan lying on the bathroom floor, showing how her son was too terrified to leave her side even when she showered

Ruth shared a photo of Nolan lying on the bathroom floor, showing how her son was too terrified to leave her side even when she showered

On February 4 2017, Nolan passed away with the post describing his fight going on to be shared more than 928,000 times

On February 4 2017, Nolan passed away with the post describing his fight going on to be shared more than 928,000 times

‘She explained at this time she didn’t feel his Cancer (sic) was treatable as it had become resistant to all treatment options we had tried and the plan would be to keep him comfortable as he was deteriorating rapidly.’

Ruth explained that her son slept for most of following days and the anguish she felt over signing an emergency responder ‘Do Not Resuscitate’ order.

On February 4 2017, Nolan passed away with the post describing his fight going on to be shared more than 928,000 times.

Ruth added how her son love his family and friends with a fierce devotion and that he ‘was a warrior who died with dignity and love’.

Alongside the letter, is a photo of Nolan lying on the bathroom floor, showing how her son was too terrified to leave her side even when she showered.

‘Now I’m the one terrified to shower,’ she wrote. ‘With nothing but an empty shower rug now where once a beautiful perfect little boy laid waiting for his Mommy.’

Reference

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